The Journey of a 1000 Miles (APIWATWOL #4)

#4 in the "A Picture is Worth a Thousand Words or Less" series. (For a description of how this series works, see installment #1)

The photo I chose at random for this installment of my new blog series, A Picture is Worth a Thousand Words or Less, was taken by Jeff in April of 2000, while my newborn baby girl was living 400 miles away with my brother’s family and I was on my sixth week in the hospital after a fairly significant childbirth-gone-bad experience.

That odd thing wrapped around my waist—the one that looks, ironically, like a baby sling—is holding four plastic containers attached to tubes inserted into my midsection for the purpose of collecting drainage from my third surgery that month. An extra hospital gown is tied around my neck like my very own Superwoman cape (and trust me, I did feel like Superwoman in that moment)—my nurse's attempt at preserving my dignity. As if I had any left at that point. 

You'll see that I am smiling—a Pavlovian response to the word cheese offered by Jeff as he snapped the photo. In actuality, I recall feeling mildly annoyed by the simple request of a photo, not out of vanity but because I felt I was going to puke any moment, the vertigo created by lying inert for five weeks rather overwhelming. I had set my goal at making it to the nurse's station about twelve meters from my hospital room, and pausing for even five seconds and raising my eyes the slightest bit to meet the camera lens felt like both a monumental burden and needless imposition. 

Beside me is Amy, my physical therapist, more upbeat than usual because it was the first time she’d managed to get me beyond the confines of my room. When I first met Amy, she asked me to lift my right leg off the mattress. No matter how much I willed my leg to rise, it lay there like a recalcitrant cinderblock. Same with the left leg. 

The next time Amy came to visit, I feigned sleep. She left without a word.

By my third Oscar-worthy slumber performance, Amy was on to me. I could no longer put her off. And so the real work of my recovery began, the work that involved greater reserves of tenacity than I had heretofore known existed within me. At that point in my life, I had completed six marathons. Not one had come close to the challenge afforded by learning to walk again.

My physical therapy sessions were grueling, both physically and mentally. Many days, I would’ve preferred to curl up in a ball and slip away to The Great Unknown, the way animals that know they're mortally wounded do. But our human ability to think is, as they say, what sets us apart. And my mind was full of thoughts of a baby I had yet to meet but for one brief visit when my brother and sister-in-law flew in for the day with Clare. Many times I thought my little girl was better off with them, hell, with anyone but me.

But every so often, such as the afternoon this photo was taken, I managed to muster up the old Lauren, the Lauren whose grit and stubborn optimism could overcome any challenge Life threw in her path. Like the task of making it all the way to the nurse’s station before pivoting and returning to the comfort of my bed and another dose of morphine. These were the moments that, I believe, helped me beat the medical odds of my illness. That allowed me to run one more marathon a year-and-a-half later just to prove to myself that I could.

The Journey to Fuck-If-I-Know

Ever get in the car and just start driving for hours on end, not even sure where you’re headed?

Yeah, me neither.

Yet that’s exactly how I feel lately. It’s not that I’m some sort of baby boomer control freak (she’s lying). Ok, maybe a few echoes of that persona still persist from my 20s and 30s. But Life has done a great job of showing me that sometimes the best things are those we never planned, controlled, pitched or imagined.

My husband? The guy sent an 8-page letter threatening legal action to the corporate conglomerate I’d recently joined (truth be told, we were being rather dickish to his smaller start-up). I was copied on that letter. A few months later, we were engaged. And in five days, we’ll celebrate 19 years of an overall pretty damn good marriage. Didn't see that one coming!

My kid? The one you’re sick of seeing me post about on Facebook? Not what you’d call a planned pregnancy. But clearly she was ready to show up and show up she did (in the most dramatic of ways). Now, I can’t even begin to imagine my life without her to share the fun. There is nothing I wouldn’t do for that creative and loving goofball of a soul. She totally rocks and I adore the shit out of her. Again, surprise!

Favorite work to date? A decade of blood donation advocacy and professional speaking that came out of the blue after nearly croaking and burning through San Francisco’s blood supply in record time (see “pregnancy” above). All began when an executive from Johnson & Johnson sat in one of my audiences and asked my husband to have me call him. A few months later, my occasional pro bono talks for blood centers and Rotarians had transformed into a full-time paid speaking tour, with no requirement to tattoo the J&J logo on my forehead, let alone mention them. Who knew?!

So here I am on a journey to fuck-if-I-know-where and I have no clue as to what it’s leading me to, if anything at all. It's the journey of chronic, at times calm and at other times mind-numbingly debilitating, physical pain and loss of mobility--today being one of my more challenging days. (You know it’s bad when you have to leave your gentle restorative yoga class after only five minutes of what most able-bodied people would think wasn't worth the time it took to pull on their yoga pants.)

This against-my-will journey has been underway for a good five years—the prior eleven being no picnic either where my wellness was concerned. But I had no idea that the road would get even bumpier than it already was. Pain has a way of coloring everything you do, see, feel, believe. Instead of the rose-colored glasses I wore in my younger pre-medical-crap days, too often chronic pain is like viewing life through tar-colored glasses. Dark indeed.

This journey has taken me to places I wouldn’t have otherwise explored, and for that I’m grateful. I love new experiences and marvel at the immeasurable ways to tackle and perceive this mysterious thing called Life. I’ve experimented with all manner of approaches to wellness from the mainstream (take this pain med and go away until it’s time for another surgery) to the downright laughable (if spending tens of thousands of dollars to experiment is your idea of funny). Some things work, some don’t. Among those that work, some days they do, some days they don’t.

The upside of pain is the noticeable increase in my sense of compassion for others, knowing that they may be masking their own pain—be it physical or emotional—much in the same way that I tend to do when I’m out in the world…or even at home with my family. (Hearing myself whine about pain bores me, so I’d rather not. Except now. In this post about pain.)

Pain also helps me connect with others with whom I might not otherwise, like the guy with the amputated leg who swims at my pool and who, like me, didn’t expect his health to take the turn it did. Or the older woman with whom I shared a water jogging lane recently. When I jokingly lamented about the activities I could no longer do, without an ounce of judgment in her voice she responded, “Well…perhaps we’re meant to do different things at different stages in our lives.” Sure, it’s a pretty simple concept, but her words helped me more than she knows.

And recently when pain and insomnia kept me awake all night and I blogged about it, I was flooded with emails from women who were dealing with their own physical ailments and the challenge of remaining positive—or even mildly optimistic—that goes hand in hand with pain. I spent days having interesting and, at times, laugh out loud funny email and Facebook exchanges with several of them.

So today, as I was driving home from the pharmacy with my pain med prescriptions after bailing on gentle yoga, I was struck with the thought that maybe, just maybe, there’s a point to all this bullshit. Maybe my own journey of chronic pain is taking me to a place where I will be able to answer the question: What’s it all about, (Alfie)? Could it be that perhaps—like those two months spent screaming and hallucinating and sucking up blood transfusions in the ICU sixteen years ago—this current and unwanted journey into the bowels of chronic pain is taking me to yet another awesome and rewarding place where I can grow as a person, share what I’ve learned, and maybe even help others as they face similar circumstances? At some point, will I be able to look back at these years of two steps forward, one step back, and say, “Aha! I get it now!”?  Is that where this journey is taking me?

Honestly, I haven’t a clue. But for today—and with the help of a giant snuggly poodle and the couch—I’m hopeful.

Unlikely Friends

Fourteen years after a near-fatal illness, I find myself dealing with the long-term effects of my medical triumph: namely, really crappy joints. This morning, however, it’s not just my joints that ache. My heart aches too because, prohibited from air travel due to another recent surgery, I am unable to attend the memorial services for a man I respect deeply.

John Warner and I were unlikely friends. He, a soft-spoken mechanic and part-time farmer from rural Iowa who married at 24 and never moved from his home state. Me, a loud former corporate exec from New Jersey, who had no less than 22 different addresses in 3 different time zones before marrying at 35. To say we had disparate life experiences is an understatement. But we had common ground in one area, which was also the greatest challenge we both ever faced: the sudden onset of severe preeclampsia and HELLP Syndrome.

For me, it meant my body shutting down following the birth of my first (and only) child: organ failure, blood transfusions, unresponsive. For John, it meant watching as his daughter Shelly’s body shut down following the birth of her first (and only) child: organ failure, blood transfusions, unresponsive. For me, it meant 6 weeks in the ICU. For John, it meant only one week in the ICU because on the seventh day after Shelly delivered her baby girl, she slipped away. In gaining his first grandchild, my friend John had lost his first child.

That experience alone would send most of us into a permanent state of despair, angry at life’s cruelty and unable to ever discuss pregnancy again given its potential for horrific outcomes. But this is where John proved himself to be more than “most of us.” He took all that grief and heartache and channeled it into helping others avoid the fate his daughter encountered.

He hosted his first local fundraiser for the Preeclampsia Foundation the same year Shelly passed away and then presented a check at the foundation’s inaugural gala benefit months later in Minneapolis. That was the night our paths crossed for the first—but not the last—time. That was where we learned one another’s stories and discovered how much in common a quiet Iowa farmer and a loud professional speaker could have by virtue of one insidious and elusive disease.

John and I swapped contact information and it wasn’t long before he was recruiting me to give talks in his home state at educational preeclampsia events he’d organized. There was something about his demeanor—quiet yet determined—that made “yes” seem like the only possible response to his requests. By way of tragedy, this man, whose paid work hadn’t involved interfacing much with others, transformed into a volunteer networker, hell-bent on raising the level of awareness and understanding of the pregnancy-related condition that robbed him of his daughter when she was 25-years-young.

He continued to chair an annual charity walk to support the cause. He joined the board of the Preeclampsia Foundation, hosting their most recent annual gala this past October. And in conjunction with the University of Iowa Hospitals, he and his wife, Brenda, recently launched the Shelly Bridgewater Dreams Foundation, with the hope of continuing their work to save the lives of new moms and their babies.

John allowed nothing to keep him from moving forward, not even lost luggage. In 2008, his suitcase failed to arrive in Washington D.C., so he borrowed clothes from my 6’5” husband and showed up at the gala that evening with shirtsleeves that hung three inches below his finger tips.

Despite the havoc and sorrow attached to our shared cause, John and I managed to share many laughs over the years. He was the epitome of transforming heartbreak into hope. But in the end, it was his heart that gave out. As someone who seeks meaning and interpretation in all of life’s significant turns, I can’t help but wonder if John’s heart didn’t take its biggest hit that day in 2005 when Shelly died. And all the fundraisers and awareness events in the world couldn’t heal his broken heart. But they could—and will continue to—help countless mothers, sisters, wives, and newborns.

Thank you, John. You spent your time here well. Now go celebrate your achievements with Shelly. 

You will be missed, sir.

John with Shelly's Daughter, Hailey, at a Preeclampsia Fundraiser

The Shelly Bridgewater Dreams Foundation was one of John’s proudest accomplishments. If you’d like to support John’s legacy, please donate to the foundation here: http://www.youcaring.com/nonprofits/shelly-bridgewater-dreams-foundation/140128

We Are All Mothers

Me and My Kid

I know many women—lovely women, loud and funny women, quiet and reserved women, healthy women, brave women—whose plans for motherhood were thwarted. Preeclampsia, HELLP Syndrome, infertility, stillbirths, miscarriage, even busy careers that claimed all their attention until neither pregnancy nor adoption were viable options. They wanted to be mothers, to birth a child and marvel in the joy that comes with shepherding a mini-me through life’s stages, to revel in the role of cheerleader, confidante, and healer of skinned knees and broken hearts.

My chest tightens every time I meet another woman whose dream of motherhood never materialized, regardless of the circumstances that created the chasm between her and the child she once imagined. I know what I’m about to say runs the risk of sounding trite coming from a woman who spends countless hours with her daughter, a woman who got her happy ending to an otherwise frightening birth experience. But here goes: We are all mothers, regardless of whether or not we have children.

Clare with Aunt Dede and Cousins Sam, Andie and Peirce

My own daughter, Clare, has been blessed with more mothers than I can count. For quite some time following her birth, I was unavailable to mother her (funny how a coma will do that to a person). I consider my former sister-in-law, Dede, to be Clare’s first mother. For nearly two months, Dede cared for my newborn daughter, in addition to her own young children, 400 miles from where I lay in the ICU. 

When Clare returned to San Francisco to be reunited with Jeff and me two weeks after my hospital discharge, our recently hired nanny, Vi, took over as Clare’s second mother. Still unable to perform the simplest tasks of motherhood, I could only watch as Vi bathed and fed and nurtured my little girl. As my physical stamina improved (I’d been sleeping 15-20 hours/day when I first came home), Vi transitioned me into the role of my daughter’s caregiver with an ease not often found in 21-year-olds. She then helped my little family relocate to Boulder, after which she bowed out and returned to San Francisco in what felt like a subtle nudge for me to step up to the plate. Given my rough start with motherhood, any shred of confidence I’d previously held about being a mom was blown to bits as quickly as my health was.

Over the years, more women showed up to mother my child. Jean, the part-time nanny and mother of two adult children, and Christy, the babysitter and yoga instructor who’s not interested in having children of her own, remain important relationships to my now teenaged daughter, even though both Jean and Christy moved away some years ago.

Yoga with Christy

Reunion with Jean

My sister, “Aunt Nooner” (it’s not what you think), mothers Clare from halfway across the country during their frequent telephone conversations, Karen’s innate sense of empathy doing more for my child’s emotional development than she knows. 

Goofing Off with Ghee

My mother—“Ghee” to Clare—has regular one-on-one outings with my daughter during which they discuss the gamut of life topics and share their own private jokes.

Favorite Teacher Cara Mentzel

Clare’s teachers, drama camp counselors, swim team coaches—they’ve all mothered my daughter in their own ways: developing her abilities, correcting her mistakes, protecting her, encouraging her, and fueling her desire to learn and grow. In other words, loving her.

Favorite Teacher Lisa Kennedy

Even the college student who noticed Clare, then five, looking lost and frightened in the crush of costumed people on that awful Halloween when a group of us were trick-or-treating and it was my daughter who was missing when the headcount fell short—I count her among those who’ve mothered my child as well. Not to go all “it takes a village” on you, but, truly, I am more grateful than words can express for every person who has ever had a hand in mothering Clare—be it for a year, a day, or the ten minutes it took that godsend of a CU co-ed to reunite my daughter with her parents in 2005.

Jill and Roscoe the Rescue

Lest we shortchange the mothering we have each done, let us remember that mothering comes in many forms—for example, the volunteer efforts of my friend Jill, who is childless but a mother nonetheless. Each week on Facebook, Jill posts photos and stories of the latest rescue pup she’s fostering, the love and compassion she has for these dogs abundantly clear.

Sabra Hosts a Party for Jesse

My husband’s niece, Jesse, is a small-town girl from Michigan who moved to Washington DC after graduating from college to pursue a career in public policy. Despite having no family in the vicinity, Jesse managed to navigate this life change well because my friend Sabra, also a DC resident, stepped in as her mentor, confidante, and yes, mother. Sabra has never given birth, but between her graduate school alumni association, undergraduate sorority, numerous junior work colleagues, and Jesse, she has mothered more people than I can count, myself included.

Sandra Takes Her Mothering to Rwanda

My friend Sandra mothers whole groups of children every time she visits another refugee camp in Africa, giving away hundreds of the indestructible soccer balls her company manufactures. For whatever brief amount of time she spends with these children—demonstrating the ball’s durability, kicking it around with them, or daring them to try to pop it—she is a mother to them, a maternal presence connecting through a shared love of soccer.

To mother is to nurture, to guide, to encourage, to love. It’s about embracing the opportunity to touch the lives of others, be they our children, our friends, or even a complete stranger who, in that moment, could use a hug or a kind word.

We are all mothers.

Happy Mother’s Day.


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Download a PDF of the first 4 chapters of Lauren's memoir, Zuzu's Petals: A True Story of Second Chances, free.  Click here and go to the link below the "Buy the Book" button.  Zuzu's Petals is also available on Kindle and Nook.  Hardcover signed and inscribed copies are available at  www.laurenwardlarsen.com. Happy reading!